Maxwell's Journey

"Together we can make a difference"
Fundraising for Kids with Disabilities


Maxwell Samuel Benvie Taylor was born February 14, 2012 and known also as Miracle Max because he was given a 20 percent chance of survival. Max was born with several physical and mental conditions which included VOGM (Vein of Galen Malformation) as along with AMC (Arthrogryposis Multiplex Congenital). Both are major life-threatening diseases that could have potentially caused several other severe medical issues and complications throughout his predicted short life. In Maxwell's first week of life, he suffered a stroke due to two blood clots situated in the base of his brain and at nine weeks went into cardiac arrest as doctors were surgically inputting a G-tube in the stomach for future feeding. 

Among many other physical deformities Max has severe Scoliosis (curvature of the spine) and Thoracic Insufficiency Syndrome. In children with thoracic insufficiency syndrome, the lung growth is tends to be limited due to rib deformities as well as spinal curves. With Maxwell's chest being more to the left side of his body and his spine curving to the right side while still continuing to grow it will start to cause more of his chest muscles to tighten around his lungs making it very difficult for Max to breath on his own. Daily Hydrotherapy is recommended for Max to help his muscles strengthen and make him more comfortable as his body continues to grow as well as to help slow down the progression of the spinal curve.

His mother, Danielle Taylor (founder of Maxwell's Journey) decided to start this not-for-profit organization to help Max thrive better and in doing so Maxwell's Journey will be putting in an Aquatic Therapy tub to help Max and many kids like him who need special devices and/or many forms of therapy to help them survive in their day-to-day lives. Along with the help of some trained/licensed therapists, Danielle can continue his movement therapy in a therapy tub which will be located in her residence. Additionally by avoiding having Max outside after he swims it will help reduce his risk of getting pneumonia over the winter. Therapeutic sessions will be offered to some other children and adults dealing with various health conditions as well as pain within the region and would greatly benefit from Water Therapy.  

The way Max's spine is curved restricts his lung capacity and therefore makes breathing against the pressure of water an excellent way to continue to keep strengthening all of his respiratory muscles. Some water activities and therapies may provide many additional benefits to children who may not have a high chance at a "normal life" or will need continuous long-term healthcare. Some of those benefits include but are not limited to: the decrease of pain, increased mobility function, build strength, keeps up your coordination, helps with muscular endurance, relaxes the body, helps with flexibility, helps build good posture and may help with ones cardiovascular status. 

Maxwell's Journey's primary goal is to provide the opportunity to Maxwell and other kids like him within the region, so they can be given constant daily care to meet the child(s) needs. It also is to help provide information to the families of disabled children that is not always given or available to them from hospitals/healthcare facilities or may not be easy to come across. 

With the help God, prayers from many people around the world and the continuing support from Maxwell's Journey we are so very thankful that Miracle Max will be celebrating his fifth birthday this month, however Max still only weighs 20 pounds (the medical term is“Failure to Thrive”) and still has a long road ahead of him. 
                 "Together We Can Make A Difference"

Maxwell Samuel Benvie Taylor 
It is with heavy hearts we announce that Max was granted his angel wings and called home to heaven on Thursday, April 13, 2017. Max passed away due to several medical complications at St. Christopher's Hospital for Children, Philadelphia with family at his side. 

Max was not just any ordinary 5 year old boy. This special little miracle had the biggest heart of gold and a love so genuine and pure it touched your soul. His brilliant mind, amazing personality and silly sense of humour, brought so much happiness and laughter to everyone in Maxwell's life. His sweet smile could light even the darkest of days and it radiated so bright and contagiously, that it touched the lives all who ever knew Max in a way like no other. It brought joy and comfort to everyone around him and made his own pain and struggles look so effortless. Maxwell taught us to always be kind, to accept one another for who we are, and that anything is possible if we just believe in ourselves and each other. Max is and always will be our superhero. His strength, courage and life changed this world in a way that will never be forgotten and his memories will forever live on in our hearts. 
For The Full Obituary Click Here

"Nothing feels better than being able to #giveback to an amazing family that has made such an impact in this world. I am so proud to include my little buddy Maxwell Samuel Benvie Taylor in my book "My Heart, My Self" 

Kerrie Lee Brown - Author of My heart, Myself